Our Son is One of The Many faces of Autism

If you are like me, I had no idea what autism was until it was being explained to be by the doctor who diagnosed my son exactly one year ago this week.

In an effort to bring awareness to this life long disorder, I would like to take this opportunity to share a little of our story. I created this video for National Autism Awareness month last April in our fight to make a difference in the lives of children living with autism including our dear son.

We have had a trying year and still have a long road in front of us. CJ is truly an incredible little boy with strength and courage. He brings such joy to our lives and his smile can truly melt your heart. He has given me so much inspiration and taught me to see the world in a whole new light. We have great hope and with prayer know that we are in Gods hands.

Click below to play video…
Thank you for letting me share.
                  

Comments

  1. Stephanie, we too are the face of Autism. Our youngest son is now almost 8 – was diagnosed at 3. He’s doing really well and we’re proof that early intervention is critical. Merry Christmas to you and your beautiful family!

    http://theboatwrightfamily.blogspot.com/2008/11/brennan-was-diagnosed-in-2005-with.html

  2. Stephanie,
    Thanks for sharing your story. CJ is a beautiful boy!
    Jane

  3. It’s important to tell your story, I’m so glad I read it.

  4. Stephanie, as a former teacher, that brought tears to my eyes. I had no idea that it was such a struggle with insurance companies to get treatment. Children with autism deserve a fighting chance for their future – no different than any other child. I loved the quote you had: “Just because you can’t speak doesn’t mean you don’t have anything to say.” Amen! God bless your family and don’t ever stop fighting for your little man! He is beautiful.

  5. Stephanie, I have friends who are facing this challenge, too. I couldn’t get the video player to come up, but I will try to get back by and watch it.

    Sending you and your family warm hugs across the miles and hoping that you have the best Christmas ever.

    Merry Christmas to you and yours…

    XO,

    Sheila :-)

  6. Happy Christmas, Stephanie. I was touched by your video and hope that CJ will get all the chances he deserves!

  7. Stephanie,
    Your son CJ is absolutely handsome. Thank you for sharing your story, I have several friends whose children were diagnosed with autism. I’m hopeful they all can have the futures they deserve.

  8. Stephanie, thank you for visiting my blog. Also a big thank you for sharing CJ’s story. CJ is a beautiful little boy.
    May you and yours have a very Merry Christmas.

  9. Stephanie, I came back to see if I could get the player to come up, and it worked for me. I don’t know what was wrong the other day.

    This video is EXCELLENT. I know several autistic children. Hence I’m familiar with the battle in which you’re engaged. You keep fighting for your precious litte man. I’m proud of you. This video is a wonderful start.

    There has GOT to be a cure for autism at some point. I keep thinking that these kids are just trapped inside themselves and unable to communicate. You’re right… it’s not that they don’t have anything to say. It’s that they are unable to say it. In the mean time, you are a wonderful voice for you son.

    XO,

    Sheila :-)

  10. As a former special education teacher, my heart goes out to your family. What wonderful people are those who have autism!!! Go for you for speaking up and informing the world more about your son and his situation in life.

  11. I just watched the video and CJ is one lucky guy to have you for a mom!!! You will get the chance to advocate for him many times through life and you will/are doing an amazing job. What sweet eyes he has! I just fell in love with him. He will speak and make a profound contribution to the world!

  12. Hi Stephanie,
    My oldest (Asher, 5) has Aspergers and was diagnosed at 21/2. My world collapsed when we received the diagnosis. I am an elementary school counselor and at the time worked with children with autism. I knew the potential and real challenges I would face. We have found some amazing things that have DRASTICALLY improved our kiddos ability to relate and cope.

    Many blessings to you friend as you celebrate the joys and the challenges of our special kiddos!

  13. I found your site and love it….but didn’t realize we were sisters in this fight. My 23 year old son is Autistic. There have been so many years of fighting and tears…but joy also. When my boy was 5 we could rarely take him out in public, he was so volatile. He now works at a Goodwill type place and rides the city bus alone. HANG ON….brighter days will come. If you ever need a listening ear and heart….alane10b@gmail.com

  14. What a beautiful little boy and beautiful video. If you don’t mind I would like to share your video on my facebook page. Praying your CJ and every autistic child will be able to get the resources they deserve.

  15. Stephanie: Came across your blog though a different site. Then I found this video. Your story is similar to my daughter and her son. She, too, made a video this past spring when the S. Carolina legislature talked about cutting all funding for ABA therapy. Here’s the link to her video: http://www.youtube.com/watch?v=eozEe1EUAuI

    I will be sending yours to her. I work at the GA House of Representatives and this past session there was a bill introduced to make insurance pay for treatment of Autism. It didn’t make it out of committee. But I worked with some people who have the latest figures, etc. Here in GA it is 1 out of every 95 boys. Just unacceptable. Thank you for your video. It is mind-boggling how many families are becoming the face of Autism. If you email me at mickle1052@yahoo.com I will forward it on to my daughter, so that maybe you can contact each other and compare notes, etc. It is always comforting to know you are not alone in this struggle.

        

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